Progress: Strengths and Weaknesses Revisited

It has been almost a year since Will was formally diagnosed with Autism Spectrum Disorder and I felt like it was a good time to update everyone on ways that he has progressed in the past twelve months. Shortly after I started blogging about Will, I wrote two separate posts detailing Will's strengths and weaknesses. Here I'll attempt to explain how these things may (or may not) have changed in a year.

Strengths

Reading - I touched on this in my previous blog post. Will enjoys reading so much that he'd forget his anxiety of leaving for school by getting lost in a book. Often we find him reading alone in his room. He likes to read out loud or quietly to himself. His preschool teacher told us that the kids in his class are usually given the option of either playing outside or reading a book after they've completed a specific task and that Will almost always chooses reading a book.

Will's interests in reading are VERY diverse and include a healthy mix of fiction and non-fiction. He currently has books about weather, electricity, buildings, music, the human body, space, dinosaurs, Rome, and maps. I keep waiting for Will to develop a fixation on a particular topic but he seems too interested in learning as much as he can about everything in the world around him.

Building Things - If you follow me on Facebook or Instagram, you'll know that I frequently post pictures of impressive things that Will has built. Below is a picture of the 4th of July float Will and I rode on during a parade this week as well as his lego reproduction of the float and the tractor pulling it. Will did this completely on his own with any help or encouragement and yet when he was finished, we knew immediately what it was.

A few weeks ago, Will asked me to build the Eiffel Tower with his toys called Magformers. They are plastic shapes with embedded magnets that allow you to snap them together to make three dimensional shapes and structures. I made an attempt at building the tower but gave up when I couldn't figure out how to build separate legs at the base without making the whole thing fall apart. Will kept trying to fix my tower for me but got frustrated when I didn't accept his unsolicited help. The next day, Ashley sent me a photo of Will's Eiffel Tower that he made himself from start to finish.

I don't think it is a coincidence that Will was reading regularly from his book about buildings in the days leading up to his Magformer masterpiece. Clearly the knowledge he is gleaning from his books is being retained AND applied.

Playing Pretend - Tonight after I put Felicity to bed, Will met me on the stairs and said we had to go fight "The Black Knight". He led me to our bedroom where Ashley was folding laundry. He told me she was The Black Knight and that she was trying to steal his gold. He was the king, of course, and wanted me to protect his gold. He wasn't a very brave king since he ran away as soon as The Black Knight took a swing at him with her sword, but he was certainly very imaginative. 

Will dressed as a knight / jester at a cub scout activity.

One of his favorite things to do before bed is to read the "Elephant and Piggie" books by Mo Willems. He treats the books like a script and likes to read the lines and act out the part of Piggie, while I read the lines for Gerald the Elephant. He really gets into playing his part and makes the book come alive. I honestly think he has a future in theater.

Memorizing / Remembering - There is a memory game for kids called "I'm going on a camping trip". The idea is that each child in the group takes turns saying what item they would like to take on a camping trip but they must list all the previously mentioned items in the exact order that they were mentioned before adding their own item to the list. I was sitting in Will's sunday school class a month or two ago and the teacher declared that it was time to play the game. The kids (all 4 and 5 year olds) didn't seem to grasp the concept of the game and fumbled along with a lot of help from the teacher. 

Will was last in line and based on his body language, it seemed like he wasn't paying any attention let alone knew how to play the game. However, when his turn came, Will looked up and said "I'm going on a camping trip and I am taking a tent, food, a friend, a bag, a blanket, and a book." He listed each of the previous items perfectly and in the exact order they had been mentioned. He also added a book as the item he wanted to bring (Surprise, surprise!). His teacher excitedly pointed out that not only had Will been paying attention, but he played the game correctly. I smiled and explained "You've discovered his superpower: reciting memorized lists of information."

One thing Will recently memorized is the name, shape, and position of each of the 50 United States on a map. He did this mostly with the help of a US map game on his iPad but also with a puzzle in his room. The closest elementary school to us has a US map painted on the blacktop and it is one of his favorite places to play. Here is a video of me quizzing him on his knowledge.

Following a Plan / Set of Directions / Incentivizing - I talked about this a fair amount in my previous blog post here. Will still does VERY well when it comes to following a predetermined plan and responds well to positive reinforcement and incentives.

Weaknesses

Safety / Self-Care - It used to be that if you were not holding Will's hand at all times, he would bolt and run off on his own and there wasn't anything you could do to stop him. I credit his preschool teachers for helping him make huge positive strides in this area. Will is still a very curious kid and is prone to wander a bit to check things out, but now if you tell him to stop and come back, he will almost always listen and obey. He also stays close when we are outside and seems content to hold our hands and walk with us. We still stay vigilant at home, keeping all the exterior door locked in such a way that he can't get out and he will still make big messes and climb on things when we aren't looking. He definitely has room for improvement but he's made a lot of progress in this area in the last year.

When playing catch with our neighbors, Will prefers to use THREE gloves.

Communication - I want to focus on one major aspect of Will's ability to communicate and that is echolalia. This is the tendency for an individual with ASD to repeat a word or phrase back to someone without seeming to understand its meaning. Often the word or phrase is repeated back with the same inflection that the first person said it with. For example, I might ask "Do you want mac and cheese?" and Will would respond "Want mac and cheese?" It made for very frustrating communication because Will never seemed to have an original thought. 

A year ago, Will's verbal communication was predominantly echolalia combined with the quoting of tv shows, movies, or songs. It seemed like Will never expressed his own original thoughts. Now Will's speech has a much larger percentage of actual original useful information. This was a change that we noticed shortly after Will started preschool and he has steadily improved ever since. Will still has trouble engaging in full conversations but he is hands down better at communicating than he was before. 

There is so much more about Will's communication skills that has improved that I think I'll do a separate blog post on that in the near future.

Social Interaction

This is an area that I think will always be one of Will's struggles but we have seen some great progress from him this year. One thing that has helped greatly since we moved to Oregon has been having Will's cousins nearby. He loves to rough house with his three male cousins and especially chase them around the house. The other day he was building a boat with Duplo Lego blocks and his cousin Jack who is almost 7 started to use pieces that Will wanted. Instead of pushing Jack or grabbing the pieces from him, Will chose instead to use his words and say "Jack I don't want you to use those pieces." That was a HUGE step for Will to be able to express verbally what he wanted a peer to do. Furthermore, Jack listened and they were able to keep playing together peacefully. 

Will (in the foreground) wearing almost the same shirt as his cousin Anthony during the family easter egg hunt

Will also continues to build a loving relationship with his sister Felicity. The laugh and play together but just like any siblings they can get on each other's nerves. Will knows that when he gets fed up with Felicity he can go to his room and play by himself to calm down (or read one of his many reference books). He is also acutely aware of how Felicity is feeling and often tells us when we should give her a bottle or put her to bed when she is hungry or tired. I'm very excited to see how their relationship progresses as they both get older.

Other Weaknesses: Will is still not the most adventurous eater although he does surprise us from time to time, like when he asked for (and actually ate!) a "meat lovers" pizza slice from a restaurant. Milk is still his favorite thing to consume and it has lead to him being tall, muscular, and solid. Will has shown some interest in potty training but still doesn't seem to grasp the concept. He has read entire books about potty training out loud and can probably teach other kids about all the steps that go into it but when it comes to actually doing it, he seems lost.

Overall, we are pleased with the progress Will has made in the last twelve months and there are some exciting new breakthroughs we have witnessed lately. It hasn't all been easy and there is still plenty to work on with Will but we are encouraged by his progress thus far.